Study of the Acceptability of Newborn Screening for SMA to Inform Screening Policy Makers in UK
Researchers at the University of Warwick, Prof Felicity Boardman and Dr Corinna Clark, are conducting a study to explore the acceptability of newborn screening for SMA. The researchers are using surveys and interviews to gather views from different groups of stakeholders:
1. 10,000 members of the general public
2. Healthcare professionals involved in newborn screening and SMA care
3. Families living with SMA
4. Pregnant women being screened for SMA through the Thames Valley Pilot study.
Recruitment for research participants is expected to start during Spring 2023.
The data that this research generates will provide detailed evidence for policy makers on the views and experiences of these important stakeholder groups, exploring their priorities and reasoning in their perceptions of SMA newborn screening.
Further information can be found on the University of Warwick website.