Our mission

To achieve the earliest possible introduction of newborn
screening for SMA in the UK.

“Every five days in the UK, a baby is born with SMA, which can lead to complex disability and, at its most severe, cut a young life short. But if, at birth, babies were given the treatments that are now available through the NHS, they could have longer and healthier lives.

There are countries across the world that already have newborn screening (NBS) for SMA but the UK is not currently one of them. For every five days that a decision is delayed, a baby born with SMA could be denied the chance of a brighter future.”

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What the Alliance is doing now

Clinicians, patient groups and stakeholders are determined to ensure that all newborns in the UK are screened for SMA.

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