UK SMA Newborn Screening Alliance – Official Launch
We’re pleased to announce the official launch of our new website for the UK SMA Newborn Screening Alliance. The Alliance is focused on securing the introduction of newborn screening for SMA in the UK at the earliest possible opportunity – so that we can #ScreenTodayForSMA
Newborn screening for SMA will ensure significantly better outcomes for babies identified to have SMA, through timely diagnosis and the optimal use of the revolutionary treatments that are now available.
It’s not ethical to delay the introduction of SMA newborn screening further when we have a simple, inexpensive and reliable test that works today, and treatment that can transform the lives of children and their families.
We will use our website and social media platforms to keep the SMA Community updated with progress, as well as letting you know when and how you can help.
Please follow us and share our updates with your followers too to help spread the word: