SMA Newborn Screening In-Service Evaluation Must be for All Newborns in the UK

As more countries introduce newborn screening for Spinal Muscular Atrophy (SMA), it is important that UK babies with SMA do not get left behind. The UK National Screening Committee Spinal Muscular Atrophy In-Service Evaluation Partnership Board will meet next week, and it is hoped that the scope of the in-service evaluation (ISE) that is being planned will be discussed. There is an opportunity to ensure that the ISE is comprehensive and offers newborn screening for SMA to all newborn babies across the UK, removing health inequalities that have emerged across the SMA community.