APPG for Muscular Dystrophy Publishes Report on Newborn Screening for Rare Diseases

The All-Party Parliamentary Group (APPG) for Muscular Dystrophy has published a report on newborn screening for rare conditions. The report reflects on the UK National Screening Committee’s (UK NSC’s) desire to “deliver the ambition set out in the Rare Diseases Action Plan for England 2023 of ‘improving how decisions are made on newborn screening for rare conditions’” and explores how this might be achieved.