UK SMA Newborn Screening Alliance Has Been Active For One Year!
Although the UK SMA Newborn Screening Alliance originally convened prior to the pandemic, disruption due to Covid meant that the Steering Group only came together more formally in April 2022. Since then, a whole year has passed and the UK National Screening Committee review of SMA has begun. We have been working hard to inform and support this review, as well as encouraging an ambitious, rapid approach to the assessment of newborn screening for SMA. We know that it is essential that the UK NSC makes a robust decision and we strongly believe that there is a compelling, evidence-based case for newborn screening for SMA in the UK, now. We hope to be able to report a positive decision from UK NSC well before we reach our second anniversary!