Meeting the challenges of rare disease in NHS newborn blood spot screening

19 July 2022 2:00 pm

The Alliance welcomes the establishment of the UK National Screening Committee’s (UK NSC) new Blood Spot Task Group (BSTG). There […]

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Understanding the financial costs of spinal muscular atrophy

11 July 2022 3:29 pm

Our Chair, Laurent Servais, has released a video (click below) that explains the impact that treatment for SMA can have […]

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